Day 1 (Friday August 3rd 2012):
• Guest registration
• Welcome dinner.

 Day 2 (Saturday August 4th 2012):
•Greetings and introduction by the Presidents of A.Ge.Mo. 18 Italia Onlus and by “Chromosome 18 Registry & Research Society”.
• Presentation by “Chromosome 18 Clinical Research Center”, the only centre worldwide researching Chromosome 18 anomalies, located in Texas and a presentation by the Chromosome 18 Registry and Research Society by Doctor Jannine Cody and Doctor Dan Hale.
• Coffe Break
•Introduction to currently available rehabilitation therapies followed by Q & A section.
• Lunch
• Focus group addressing the potentials of individuals affected by chromosome 18 syndroms .
• Division of participants in break-out groups based on pathology (18q – 18 p – tetrasomy 18 p – ring18, trisomy 18); simultaneous meeting at a separate location of all the grand parents to promote dialogue and exchange of information and individual experiences.
• Division of participants based on nationality to discuss local issues and initiatives. Presentation of the “Database of Chromosome 18 anomalies” project within the Italian delegation with the intent of increasing its scope and discuss possible updates. This project consists of a database funded and developed by A.Ge.Mo. 18 Italia Onlus, in partnership with the Department of Prenatal Diagnosis of the Hospital of Brescia, and under the supervision of Dr.Caterina Groli. The underlying data was collected amoung all the Italian patients who agreed to participate, and made possible the compilation of statistics now constituting the only medical reference for new cases.
• Dinner

 Day 3 (Sunday August 5th 2012);
• Presentation by American scientists on any recent discoveries made in the USA.
•Session for parents on sibling’ issues, and at the same time in a separate room meeting and exchange session among siblings of affected children.
•Coffee break
•Introduction to various experimental techniques.
• Presentation by adult patients affected by the syndrome 18, coming from different countries, who will each share their experiences based on their abilities and potentials (there will be a presentation also by an Italian representative).
• Lunch
• Presentation of the project “Progetto Libero Tempo” developed and funded by A.Ge.Mo. 18 Italia Onlus in collaboration with Cooperativa Sociale “La Rondine” based in Brescia. This project, now in its second year, aims at occupying the free time of teenagers with cognitive disabilities in a leisurely way. The program entails the afteroon attendance of 10 teenagers twice a week during the school year and three work days a week during the summer. The idea was born out of the need to have disabled teeengars live similar experience to their peers but in a protected environment to prevent those inevitable frustrations to which they would be exposed in the outside world. This project aims as well at covering that huge hole that families with cognitively disabled children are forced to deal with covering the age from 14 to 18 after secondary school. At the moment the state is not offering anything that guarantees adequate support to teenagers of this age.
• Open session for questions to the medical commitee.
• Greetings